Please help with this research.

HarvardWhy would a posting in a Travel Blog have absolutely nothing to do with travel ? The shortest answer is that somebody asked for help and we said that we would do so. We’re doing that by asking you, in turn, for your help. So please pay it forward a little and help with this, if you can.

The Wall Lab at Harvard Medical School asked for out help in reaching out to the community. They are looking for volunteers to take a very short survey and submit a short video. The help that they asked of us was to take a Guest Blog spot here. We readily agreed and hope that you will agree to help them

If simply asking isn’t enough, think back to how long it took to get your diagnosis. Will your help with this make it a quicker, simpler process for other families in the future ?

Lastly, let us express a thought as to why this may help you, even though you already have your diagnosis. We have the attention of a few legislators. That has happened as we’ve progressed from 1 in 1000 to 1 in 88, or 1 in 50. We still need them to develop a sense of urgency and the easier diagnosis can become, the easier it is to get them to develop one. In short, this helps the whole community.

OK, here is the post from the Wall Lab:

 
The PuzzleMouse Project
Detect early. Intervene early.

 

The Wall Lab at Harvard Medical School is just months away from completing a mobile system for rapid detection of autism and needs your help! Participate in this study to make a difference for children and families with developmental delays.

 

We are seeking caregivers of children, ages 14 months to 7 years old, with or without a diagnosis of a developmental delay. With your participation, we will be able to finish work on a tool that simplifies the process of detecting autism by bringing it closer to homes through natural home videos of the child in a social situation and straightforward parent questionnaires.

 

To participate in this study, you will need to:

  • Submit a short survey. You will be asked to complete ten questions about your child’s typical behavior.

 

  • Upload a 2-5 minute home video of your child at play. A birthday party, playing with friends, or a day at the park, should work wonderfully. If you are taking the survey using a mobile device, you can take a video then and there and directly upload it. If you do not have a video available, you may wish to take a video before you complete the survey. Alternatively, if you complete the survey and do not have a video available, we can email a link through which you may upload your video.

 

Through this beta phase of our research we hope to create a system that will reach families across the country and around the world, including families who do not have access to the medical infrastructure needed to diagnose developmental delays. The end goal is to help families get the attention their child needs in a matter of days.

 

This current beta phase will allow us to refine our tool to provide optimal information and value to families, and key data for doctors to make the right decision about diagnosis and therapy. Understanding and acknowledging the difference of a child’s behavior at home versus in a clinic is what drives our research to seek your participation to validate a faster screening approach for autism.

 

Visit https://puzzlemouse.hms.harvard.edu  to see how you can support this cause and facilitate access to a novel screening approach to the community.

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